Dr's wont help. I can barely function. My nan, and dad both died if copd and heart disease

My heart aches for you, . Can you tell us more about your doctors and how they have responded to your health issues? Have you been diagnosed with COPD? Do you see a pulmonologist? Thinking of you. - Lori (Team Member)

They r not. They barely do anything 2 help me. Ive always had shortness if breath, and always had 2 get antibiotics whenever I got a cold/flue, ciz it would go 2 my throat and chest. I would leave it 4 months, hopying it would clear on its own, but never did. In 2019, I nearly died from again They reckon a cardic episode, I was lucky 2 survive, but have major problems with mobility, cognitive function and many other things. They also, state I had a bleed on the Brain, phunmiomia. Hypoxia, kidney stage 1 and brain injury, but hsve since read in my medical notes it was recently stage 3. A couple of years ago, after having scans, was told by a respotory nurse that they, whoever, they r, and only reckon. I got copd. So, was put on a revolver inhaler, or whatever its called. Since last year, my health has declined so much, with breathing and weakness, being the worst. And bloating and all over body swellings. That I have trouble fitting in2 my clothes. Since b4 last oct, I decided, I couldnt ignore it any longer, and desperately tried 2 get help from my Dr's surgery, also, asked 4 a heart scan, like the 1's they use 4 pregnancy, since my father recently died from heart disease, and given that i was diagnosed with heart problems myself in 2003, 4 which 8 never had any follow ups, and also, given that I went 2 e&e with chest pains, swellings, pain in my arms, incontinence, and a fast heart rate, who done an ecg, which has never shown anything, other than a fast heart rate. A standard ecg and bloods dont reveal any heart condition, nor did it in 2003. All the Dr's have done, is referred 2 the swellings as just the way im built, which is not true. I know the difference between fat and swollen/bloated, but what can I do, when they r saying this. They have refused 2 refer me 2 a renal, and cardiologist. As the day goes on, I can do nothing other than walk 2 the toilet and back, which is an effort, I only just make it back 2 my bedroom, which is where I now spend most of my time. I live in a tiny 1 bedroom flat, so the bathroom is not very far away, but never the less, its a challenge, by the end of the day, I can feel my heart working so hard, and when I check my states my oxygen us 82 and my heart rate us 111, which I know is damaging my organs, but what can I do, coz every time I try and find out what tests have actually bin carried out, I.e: bloods, they then accuse me of shouting and being abusive, then hang up on me. Only once have I ever spoken in an inappropriate manner, and that is after becoming so fustrated and being antagonised by the dr I was speaking 2. Even the receptionist have fabricated things about my behaviour, when ive spoken 2 them on the fone. I feel helpless, I've tried everything 2 get them 2 listern 2 me, but I am met with nothing but a wall of refusal 2 diagnose me with anything, refer me or give me any sort if treatment, other than laxatives, which I cant keep taking, im on my 3rd or 4th large bottle off, cant remember whats its called. Im having problems, focusing, concentrating, calculating things, memory and so on. I have extreme problems talking over the fone, as I become so breathless, that my voice raises, not because im shouting but because, im struggling 2 breath, given this, every1 seems 2 want me 2 explains iver and iver again, which is exhausting, I also, cant take on board 2 much information, at once. Listerning 2 people waffling on, does something 2 my brain. If I told u everything, u wouldnt believe me. I could write a book, if only I could actualy focused on writen information. Thank u 4 getting back 2 me and showing an interest.

Thank u 4 yr reply, and hugs, but a&e have already let me down when I went there 2wards the end of last year, when i had chest pains, bloating/swellings all over my body, breathing differculties, incontinence, and so on, and they kept me all evening, night and all the following morning, only carried an ecg, which my heart problems r not detected by a standed ecg. Then discharged me, saying there's nothing wrong with me, when i questioned y am I so swollen then, the nurse simply stated yr heart has probably got weaker, and told me 2 c my dr. My this time, I had no fight left In me.

Thank u so much 4 yr reply amd the link.

I only have a older brother, and Ive tried 2 talk 2 him, but he has no under standing, or empathy. Instead, he dont listen and i end up having 2 explain things, that ive just told him. He questions me about everything, over and over again. I try my best, 2 explain, but i become so out of breath, and my concentration. Memory, averything else, is affected. Its so draing, that I end up coming across as being sharp, but rather than him having some patients and understanding, he takes insult and storms off, refusing 2 help me, which is what I need, since I cant do much around my home any longer, resulting in it becoming a bit ofess. I have no1 else, as we lost both our mum and dad in recent years, which was very upsetting, esp my mum, who i had always turned and who was the only one that ever helped me, in any way possible. I though me and my brother would become closer, given this, but that hsdent bin the case. He has used it 2 get even distant from me. My mum was a very strong, intelligent woman, and no1 got away with taking us 4 fools and with not doing what the r supposed 2. I know that if she was here now, she would never would have allow the medical neglect thats been happening 2 me.

Don't know how a paster would b able 2 help. I need medical advice, support from other suffers, not just some1, 2 speak 2, who cant help. I will try yr link though. So, thank y 4 that. And thank u 4 comminacating with me.